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University of California, Los Angeles CA (UCLA)
When: Ongoing; usually can be conducted by phone & mail


  • Dr. Brent Fogel, a prominent researcher of a related disease, has recently broadened his investigation to include ALS4.

  • He is conducting a molecular genetic study to better understand thecause of ALS4 and to identify new targets for future therapies.

  • To do this, he needs to collect a small blood sample from as many ALS4 patients and their blood-relatives as we can provide.

  • In most cases, this collection of blood can be handled via the mail.

  • To learn more about how to participate, email Bonnie Mattingly Woolston at

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