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How can I participate in research on ALS4?


Our doctors need us just as much as we need them.  Participation in ongoing research is essential.  Currently the National Institutes of Health has an open call for all ALS4 patients.  You can find more information by contacting us or the NIH directly:


Christopher Grunseich, MD (NIH/NINDS), Research Neurologist


Neurogenetics Branch

National Institutes of Health, National Institute of Neurological Disorders and Stroke

Bethesda, MD 20892


The National Institutes of Health goes to extraordinary lengths to keep your participation in these studies confidential.  If you have any questions about the confidentiality of your participation please feel free to reach out to the NIH; they would be more than happy to walk you through their confidentiality protocols.

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